Supporting people with overgrowth syndromes
Me before my amputation in 2010
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WELCOME TO MANDY SELLARS.COM.

 

Me in 2014

           SOME OF YOU MAY KNOW ME FROM NEWSPAPERS YOU HAVE READ, PICTURES YOU HAVE SEEN & DOCUMENTARIES YOU HAVE WATCHED. THIS HOWEVER, IS THE ONLY PLACE YOU CAN LEARN UP TO DATE INFORMATION!

 

My most recent documentary was entitled:
'SHRINKING MY 17 STONE LEGS'
  It was broadcast in the
UK on MONDAY 18TH FEBRUARY 2013 at 9pm on CHANNEL 5
as an Extraordinary People Special. Unfortunately it is no longer on Demand 5, but you maybe able to see it on 'You Tub
e'.


HEALTH INFORMATION:
I finally have a diagnosis for my condition,
it is a single letter mutation in the PIK3CA gene,
this has caused the overgrowth in my legs & foot.
I was the first person in the world to be discovered with
this particular type of gene mutation.
So now I can say that I have

'SELLARS SYNDROME'



All this was down to two amazing doctors who took the
time to research my condition.


Me with Dr Semple & Dr Parker


Subsequently they were able to offer me treatment
in the form of a tablet that has amazingly started to
shrink the fatty tissue in my legs & foot.
Since I started the treatment in 2012 I have lost around 4 stone,
this mainly from my effected areas of my legs and foot,
plus no side effects which is always a bonus.



Me with my 'magic pill'

For more information on this condition and Segmental Overgrowth
please see my section on Segmental Overgrowth & PIK3CA Gene Mutation
& you can also go to a website that I have designed specifically for this condition, the address is: www.gopi3ks.com/


HELP FOR OTHERS:

 If you or anyone you know would like any help in finding out more
about any overgrowth
condition you or they maybe living with
then please contact me on this email address:
funnypaws2004@hotmail.com



 
 


 

 



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